Raising Dysautonomia Awareness
Building a community of experts working together to increase understanding of Dysautonomia -and what can be done to treat it.
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What Is Dysautonomia?
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Dysautonomia is an umbrella term for conditions where the Autonomic Nervous system (ANS) doesn’t function in healthy balance.
The ANS is the automatic control system for your body — regulating heart rate, blood pressure, digestion, temperature, breathing, pupil size, even sweating. When it misfires, due to insults like viral infection, shock, trauma (psychological and physical) everyday things like standing up, eating, or exercising can trigger in some people severe symptoms: dizziness, fainting, rapid heart rate, fatigue, gut issues, and temperature swings, extreme fatigue plus a whole host of other symptoms.
Since the 2020 Covid19 pandemic it is estimated that 1.9million people are suffering from 'Long Covid' - could exploring this condition through the lens of Dysautonomia help us find a way through the maze and offer real help?
Our Mission
We started Dysautonomia Matters to gather an interested and passionate team of people together working in all aspects of health care, to promote deeper understanding of Dysautonomia.
Together we will explore the multi-faceted approach that can help patients suffering from this condition, return to the lives they want to live.
Our goal is to see secondary and idiopathic Dysautonomia explored on the medical school curriculum, especially in GP training, and to provide further professional development opportunities for any patient facing health care provider.
Who Are We?
Led by Suzy Bolt, the founder of the Rest, Repair Recover programme (an online programme dedicated to the healthy function of the Autonomic Nervous system), we are a growing group of health care professionals committed to raising the awareness of the hugely common but often unrecognised condition of Dysautonomia.
Dysautonomia affects around 70 million people worldwide, with numbers growing daily since the covid 19 pandemic. It’s currently a condition that only specialists can diagnose, and is very difficult to test for. This leaves patients feeling abandoned or hopeless and Doctors at a loss as to how to help. Join us to help change the paradigm around this ever present condition.
Sign up to our newsletter below and we will be in touch with our first event in 2026. Are you a medical professional wanting to join the educators team? Contact Suzy Bolt using the contact page below. Together, we can change lives for the better.